Interm Maintenance DONE!!! VERY Merry Christmas

Sorry for not updating.  When things are going so well hard to remember to update.

On December 23 Caine had his last treatment in Interm Maintenance.  His leaves remain high and he has been happy and healthy.  His personality is fully back and his hair is all back ( he is even considering a trim).

Early in the new year we will start the last phase of frontline, Delayed Intensified (DI).  It will be a bit tougher but we are all looking at the bright side once we get through this we will move to maintenance and get back to some normalcy with at-home treatment and a once a month visit to the clinic.

MERRY CHRISTMAS!!!!
As I said to a friend today having Caine so healthy was the best gift of all for our family.  Santa was very good to both kids this year.. new desk with a gaming keyboard and mouse.  Both are painting their rooms (pics to follow once complete).  Our families are coming over the next few days to celebrate.  Life couldn't be better.

MERRY CHRISTMAS from the Webers!!

More than 1/2 way through Interm Maintenance and doing GREAT!!

I realize I don't post if things are going well...so guess what things are going well.  Caine is doing really good with this phase of treatment.  He has been attending school when he can and is getting through his treatments without any affects.  We will take it as the next phase (Delayed Intensification) is supposed to be a hard one, although also the last hard one :)

Caine did decide to not play hockey this year.  He stated his body just aches when he skates and he just can't do it.  We are ok with that as him doing what he is doing by going to school and going out and playing with his friends is just as good as we have heard others are not doing as well as he is and constantly in and out of the hospital.

Caine has one more rounds of shots (on Friday) and one more chemo treatment on December 23 then we are done til the New Year!!!  Keep the prayers coming as they are working and we are getting closer to getting into maintenance and a more normal cycle.

We are also getting out and having some fun.  Caine took a picture of "Brody" and showed us this....his personality is back for sure!!!

Moving along...

So far so good with this phase of treatment.  He is going to school when he can and in great spirits.  He still has these odd adhoc puking sessions that no one can figure out but he doesnt spike a fever and feels well after so they arent worried yet.

Today he has the privilege of being the 7th man at the Pat's Canadien game today as part of Hockey Regina Hockey fights Cancer.  Him and his friend Kellyn got go on ice to watch warm ups, participated on the pregame pep talk, lead them out when they came on the ice and do the ceremonial puke drop.  So proud of them both.

Interm Maintenance begins tomorrow!!

Last week Caines counts were not where they needed to be to start his next phase of Chemo, so we had a week off.

Went today to check again and his counts are up to 1500 vs 300 (needed to be at 750 to start).  So tomorrow we start our next phase Interm Maintenance.  IM, we are told, is quite mild so we should have a good holiday season.

It has bee nice to see Caine start to come back to his normal self.  His appetite is back and he is wanting to do more.  His hair is starting to fill back in so he is getting more confident(even ok with the odd pic)

Think and pray for us as we go through Phase 3 of 4 of the frontline Chemo treatments.

2nd Phase of Consolidation COMPLETE!!!

Man I am.getting bad for updating the blog. 

Caine has completed Phase 2 of Consolidation.  He made it through with some nausea and vomiting but overall we are happy.  He never become neutrophenic this time...came close at 100 but never did zero out.  We are really happy.

Caine did participate in Halloween this year at both the clinic and with his friends.  I think he enjoyed being a "normal" kid for the day.  He said he got tired but it was worth it.

Caine also took part in his first hockey game on Saturday.  He didn't make it through the whole game but did pretty good overall.

We head back to the clinic tomorrow to see where is levels are at to see if he starts his next round of chemo called Interm Maintenance.  It is supposed to be a lighter round with most kids doing school and sports throughout.  We are looking forward to having something light and a great holiday season.

Slowly but surely we are making our way through this journey.  It has been hard on Caine as he just doesnt get why it happened to him and we have no answers.  He keeps saying he just wants to be normal.  It breaks my heart.

Doing much better!!!

Caine is doing much better this week as far as nausea is concerned.  His appetite is starting to come back so that helps as well.

Caine even went to his first hockey practice on Sunday.  He only made it 30 minutes but did well.  He said he will continue to try.  My brother Ken is coaching so helps alot

Caine is done the hard drugs but now his counts are starting to take a hit.  On Monday is hemoglobin, platelets and neutrophils were all down.  So the plan was to get a platelet transfusion on Tuesday (which we did and it really perked him.up) and on Friday he will have another blood transfusion for his hemoglobin.  His neutrophils are coming down slowly so he is still high enough to do things but just on the edge of "house arrest".  So once we get to Friday we will know what the weekend holds.

Also as a family we had my Grandma pass away at the young age of 97.  We will miss her dearly but know she isnt in pain anymore and reunited with Grandpa, my Dad, my Uncle Rick and her family.  Love you always.

Not off to a good start of the week

Caine has started his second week of Cytarabine and it is already bad.  He had a good weekend of not getting sick.  On Monday at 11pm that changed...he ended up getting sick three times and again in the morning when we arrived at the clinic.

Caine did his treatments while we waited for the bloodwork to come back..but we all anticipated that he would require a blood transfusion as he was pale and his hands were white.  Last time he had to get a transfusion he was sick to his stomach too....and here we sit getting a transfusion as his hemoglobin is low. 

Good news he is starting to feel better and no stomach pain.  So as long as the day gets with a transfusion glad to have one to make him feel better.

Please think of Caine as we make it through the next 3 days as it will be trying to Caine.

So happy this week is over....

Caine had a rough week this week.
He could not bounce back after Monday and threw up all week, sometimes up to 3 times a day.  Smells would make him nauseous to the point of puking.  Needless to say he did not attend school this week.  His bloodwork was awesome with his neutrophil counts (part of the white blood cells that is your immunity) being at 2600.  We will take it.

Caine had a day off today from treatment is is starting to feel better and have a bit to eat with no puking.  Having a 4 day break will be good for him.

Caine is getting frustrated as being sick is not a good thing.  Lots of questions around why him and why there isnt meds that they can give people that dont make him.sick.  I dont have answers for any of it and it kills me.

We are working hard in taking it a day at a time and looking forward to getting through this block of treatment at the end of the month.

2nd week is gonna be tough

Caine had a lazy weekend which was great.  He felt great and his levels were great so that is all.that matters.

We started the 2nd week of consolidation and it has been not so good.  The drugs he is on Cyclomosphomade (just for one day) and Cyberatine (4 days a week for 2 weeks) are the two drugs that make him not feel too well.  Yesterday we were there all day and they gave him three separate antinausiant medications and he still ended up being sick at the end.  These drugs also kill his appetite and cause him to feel "off" not sure how else to explain it.  I can't wait to get through the next few weeks so we can get back on track a bit again.

This is Caine out cold from all the antinausea meds...

On a great note I went to the fundraiser my fabulous friends, Anna and Brad, hosted for Caine.  It was so very awesome and raised about $3500 which will help our family alot in the coming months.  Words cannot explain my gratitude for my wonderful Sasktoon friends I have...love you all so much.

Here is hoping this week will be low key and Caine can get through it like he has in the past.

Week 1 of 2nd phase of consolidation

Where has this week gone.  On Monday we went into hospital for bloodwork to see where is levels were.  I would have beat that he would have increased slightly from 400 that he was on Friday.  I was wrong...he was at 1100 which is awesome, but also meant we started our next phase of chemo which is the same chemo as last round and it was tough on him...so here is hoping we make it through this phase with the same amount of pukes and no infection.

Caine is starting to loose his hair.  It is fairly thin but he refuses to shave it just wears his toque. I am on with it but he isnt happy about it.  Caine is angry about this the most..I think he would take puking over loosing his hair anyday.  We have to remind him it will grow back thicker and nicer...right now he doesnt care he just wants his hair.

Caine is also going to school half days this week while his counts are high enough.  He is enjoying being back but not liking recess too much right now as he has to keep his needle in his port for the week and doesnt like running with it so recess is pretty lame for him.  He has great friends though so he is never alone.  He also wrote his first math test today and the teacher said he did very well so so proud of him.

Bloodwork wont be done again til the end of the week and with the current chemo he is on Nelarabine, it doesnt usually effect counts.  Hoping his immune system is even higher so he can have a great weekend.

Great news!!!!

We went into clinic today to get Caines bloodwork done to see where his levels sit before the weekend.  Good news his counts have come up to the point he can go out and be around people (not massive crowds) If you are sick please still stay home until you are better but if you are well and wash hands you can come around.

Also to our surprise the MRD test results were back already.  CAINE IS NEGATIVE!!!  We couldn't be more happy..
Even Caine is telling everyone as he is pretty stoked that all the crap he is going through is working.

We also trial ran Caines live feed from school and he enjoyed being a part of it.  He looks forward to being on line when he cant be at school.

We will find out on Monday if his next round of consolidation starts.  This will all depend how.much more.his levels come up over the weekend.  He is currently at 400 and needs to be at 750 to continue.  If he isnt at that they will hold his start date for an extra week.

Have a great weekend!!!

Getting closer...

We went in Tuesday this week for follow up blood work.  His immunity is still low (not as low) so we are hoping by tomorrow (Friday)  it is high enough he can at least hang out with a friend or two.

His counts were good enough to get his bone marrow biopsy on Wednesday.  He had quite a sore back after but today it seems ok.  They have sent his biopsy off to get the MRD test...should have results early next week.  Please pray for negative MRD ad that will make this all worth it.

We did go out on Sunday (as Brody went to the farm with Grandpa) and Monday to do a bit of 9 hole golfing.  It was good to get Caine out to.enjoy this nice weather before the snow flys :p

Lastly at school they are putting JJ in his chair while he is away.  JJ is a large stuffed monkey from a great organization called Monkey In My Chair.  His class has been having a blast with him and taking him with them wherever they go.  I cant share pics yet as I dont want to put any of his classmates on line :).

Numbers are starting to come back sslloowwllyy...

Sorry for the lack of updates.  We have been hanging at home trying to keep Caine away from anything which may make him sick.  As of today his numbers are still extremely low so will be at home.  He is getting frustrated as he misses hanging out with his friends but no immune system means no visitors until it is back up.

Caine is also doing school work at home daily.  His teacher and school has been accommodating and by hopefully by the  end of the month he will have a private YouTube channel set up where he can participate in classes live or watch replays if he cant watch live.  This will get him reinvigorated with school as me teaching him is only so much fun...although have to say I am getting pretty good at it.

Next week is a no treatment week.  We have formally finished Phase 1 of 2 of consolidation.....so happy about that.  We will however go in Tuesday for blood work and if his numbers come up enough we will have a bone marrow biopsy on Wednesday to see if the MRD comes back negative now.  Please pray that it does.....if his counts arent where they want them we will be delayed a week to get the bone marrow biopsy and then an additional week to start Phase 2.

We are rocking the treatment and pray that he continues to do well through the remainder.

Have a great weekend.

Numbers are down

As we make our way through the week and Caines treatments his blood count numbers continue to drop.  On Tuesday that meant another transfusion ( odd to see a bag of blood there vs chemo or flushes)

He is not allowed to be in crowds now and not around anyone who is even a bit sick. 

He is in good spirits but getting frustrated with all the time.needed to be in hospital to get all of this done.  It will be a LONG few months until we get threw this and the next block of consolidation.

MOM SIDE NOTE:  For me pure panic mode has set it.  When his counts are down it makes him VERY subspectable to infection which means a possible hospital stay.....didnt think I had anxiety but after this pretty sure I do.

Keep us in your prayers and good thoughts.

Hard week

This week as a bit harder in Caine.  He was getting sick once a day this week.  He took it good but get so worked up around taking Oral meds he will sometimes just puke.  We are working on plans to work through this and it is slowly working.  In talking to the doctor and nurses we are trying the dissolvable tablets of Zofran vs the liquid as the liquid gave him alot of anxiety and sometimes puking from it as it worked him up so much.  The dissolvable tablets work great so one less thing to worry about.

Saturday was a non puke day and so far today as well.  If he gets too warm or exerts too much it seems to make him have an upset stomach.  Next week is a light week.  He has one med, Vincristine, that he has had before and did well on and his  Erwina shots which has no effect on him.  So hopefully he will feel good and get to school for most of the week (as long as his counts dont drop).

MOM SIDE COMMENT: This became very real for me this week with him puking and having alot of discussions with him around puke.  I try my hardest to make it as light as possible but so hard when all you want to do is make it go away.  My heart just broke this week. 

Also wanted to mention my great heart friends in Saskatoon being lead by Anna Maton are throwing us a fundraiser on October 5 at the Capital in Saskatoon.  Tickets are $25 before Sept 20 and $ 30 after.  There is a magician at 8 and band at 9.  Starts at 6 stay as late as you like.  Kids are allowed until 8.  We are hoping Caine will be good enough for us to attend....

As we work through our week I will update.  Keep ths prayers coming for Caines continued treatment and health.

First transfusion today...

Caine got though last week pretty well after Monday.  Caine is starting to feel the effect of chemo a bit as he has been sick.a few times.  I know Caine is a silent sufferer so hard to catch him before to ensure he doesnt get sick.  Just have to keep pressing Caine to be honest on how he feels.

Since Sunday Caine has been getting headaches when he wakes up in the morning.

Over the weekend, Caine had a sleepover with his friend Kian and I took Brody on a mini holiday to stay in a hotel over night with a pool (he had his friend Logan join and my friend Tamara joined).  We also went to a labour day party at Bob and Lynn's place in White City.  The boys got to swim and play with their friends...Caine was very energetic that day.

On Monday we had a chill day.

Today was the first day of school and Caine was able to attend in the morning.  He was happy to be back at school with his friends and just be a kid.  It is hard for Caine as he always asks why did I get cancer why do I have to go through this why cant I just be normal.....when you dont have an answer it is tough.

We picked Caine up at lunch and took him to his appointment at the clinic.  They thought he looked pale and took his blood work.  We also mentioned the headaches.  The doctor thought his hemoglobin was low and we did blood work and it was.  That means he had to do his first blood transfusion.  Since we couldn't stay at the clinic we had to go to 4F at the General to.get it done.  It takes 4 hours.

They will be watching his levels.closely this week as he may need another before the week is over.

Also with the drugs he is on, Cybaritine, it seems to be the culprit to his queasiness.  He got the drug earlier today and didnt tell.us his stomach wasnt good and ended up getting sick during his transfusion.  Gave him his vomit cover medicine as we like to call it (Ondansatron) and it seemed to settle down and he could eat.

That is it.....one day at a time..sometimes one hour at a time.

Long hospital day today...

So we are in week 2 of consolidation and he is doing well (although totally hates needles and bandaids still so not a great event)Today with one of the chemos he needed ALOT of hydration.  Before his treatment they put in 1L and afer his treatment we have to stay around 3 hours for another 1L of IV hydration....we got here at 830 and may be out around 330.  Had a nice picnic lunch today instead of eating out so enjoyed that.

Just as his last IV fluid ended he got sick...we missed our window to get his nausea med in.  Damn it...he is in good spirits still....just need to keep him hydrated for thr rest of the day.

Caine was feeling good this weekend so we decided to head to the Rider Game...good one to watch...he also got to have his ever loved Poutine.

We have treatments up til Thursday( not as long as today).....have a great week and we will post on how he is making it through....

Phase 2 Consolidation starts...

We have had some downtime so we got out over the weekend and did some boating and camping at Alice Beach with our friends the Geigers.  It was a fun time and Caine really enjoyed being away and outdoors.  It was nice to see him just be a normal kid with his friends.

On Monday we started Phase of treatment called Consolidation.  We are starting strong with good blood levels and great health.  This section of treatment has a few more leukemia specific drugs so may be a bit tougher on him.  He will probably lose his hair this round but with fall around the corner he is ok as he can wear his toques.

Lastly, I found a great organization called Childhood Cancer Canada.  They have different programs and packages for kids with cancer.  Caine received his Empowerment pack yesterday and received alot of great stuff including a new Lenovo tablet.  He was over the moon.  It is a great organization so look at donating.

Now they tell me I am wrong

Caine had to go.in for his 5th out of 6th Erwinia shot today.  They ran a MRD test (minimal residue disease) to.more.deeply analysis his bone marrow than the microscope here.  This test found that he still has 3.3% left in his bone marrow so not quite in remission.  The bad side of this is we feel totally blind sided as last week they gave us the all clear from.the first test.  But looking at it from a different angle he only has 3% left out of the original 64% (which was probably higher as they never did the deeper dive MRD test).  I did some research and most kids with tcell ALL will usually not go into complete remission with the induction phasebut get really close.  Going into the second phase of consolidation should get rid of the remaining 3% as there are more treatments that are leukemia specific.  We are trying to stay positive about all of this and keep taking it one day at a time. 

We start consolidation phase on Monday, August 19 and it has two parts totalling 72 days....fingers crossed by Halloween we get good news that it is completely gone.

We are in remission!!! Treatment continues to keep it that way

Today was a good day.  Caine is having his last day on steriods (yeah as not sure our food bill.could keep.going).  We were advised that the mass in his chest is 100% gone.  That meant that we could finally get rid of his PICC line and get a Port ( which is a device under his skin on his chest so he can shower and even go swimming if he likes).  The BEST thing to happen today is they did a bone marrow biopsy and they said he is in remission.   What that means is from the samples they took there are no cancer cells left.  Treatment will continue to ensure they dont grow back and get the ones which may "be hiding".  We are over the moon.

Today we completed our first round of chemo with no hair loss, no sickness, no hospital stays and being told we are in remission.   We will continue getting the remaining three shots he has left over the next week and phase 2 of chemo will start the week of August 19.  We are hoping his blood counts stay good so we can get on the boat a few times before the end of summer.

Thanks for your continued support and prayers as we continue down our path.

Almost done first round

Sorry for the delayed update.  We went in on Thursday for his IV chemo treatments and they surprised us with his first Erwinia shots.  He was not happy but we were as they are pretty critical to his treatment. We had to sit for 2 hours after so Burger King it was.  His blood levels are still good so we are happy.  We need.to head to 4F in General on Monday for his next shots.

SPECIAL THANKS to the Allan's for the amazing supper.  You are amazing neighbors!!!

He was feeling pretty good after treatment so his friends.come over for a bit to watch the Rider game.  He was very happy to have them around.

We had a chill weekend and left the house to go to Boston Pizza for Wade's birthday.   Caine was happy to get out but made me.wipe down everything when we got there.  On Saturday he even wanted to play pool so we took him to the broken rack to play.. he didn't last long to hard to bend over with all the puffiness from the steriods.

I will.update after our appointment is over today.

Update:  his shots on Monday went fine.  He had a chest xray as well.

Blood work follow up still good

We went in Monday morning to get Caine's bloodwork done.   His levels are still good which means his immune system is still fairly strong.  They are expecting it to drop but for now it is all good!!!

We headed to the clinic tomorrow for his last IV chemo treatment for this block.  Will update later tomorrow.

Seem to always be waiting for the next thing to drop...

Caine's treatment on Thursday went well.  Dr. Hok was our doctor today and he stated that with treatment 3 this is when we can expect to see Caines counts start to drop.  We have to watch close for signs of infection such as fever and tiredness and Caine just not being right.  We have to go in Monday for a CBC to see how he is doing with Chemo on Thursday.

Good news is that they found the replacement drug, Erwinia.  They are anticipating it to arrive Wednesday so we will most likely start those shots on Friday.

Watching for changes in Caine may be tough.  The steriods are taking their toll on Caine.  He is starting to puff out and have drastic mood swings.  He was having a great day with friends over and at  night was VERY upset about everything happening to him.  It breaks my heart....new told him this is happening to everyone and even though you are the one going through th4 crappy parts we are all here for anything (even Brody was wanting to be in on the conversations and showed he cared).  It will definitely be a long 12 lore days with steriods....cant wait til they are done....

Still doing great at home.....

Sorry for the lack of updates but we have been doing great at home.  Caine is super stoked to have his xbox and TV in his room (hard to get him out now), but we do get outside once a day.  Yesterday he even went and hung out with his buddies at a Lemonade stand.

I have become very obsessive with cleaning and everyone sanitizing so be prepared if you come over to sanitize and have it maybe smell like a pool :).

We have also been eating the best we have eaten in a while,  ham and potatoes, chicken, ribs, quesadillas and nachos.    So that being said we are all feed well while is on steriods.

His backup drug, Erwinia, still has not come in due to world wide constraints.  We are going help them as much as we can by making some.calls to help them get some as it is important to Caines care.

His next treatment is Thursday so I will update after that

WE GOT TO GO HOME!!!!

After 14 days of being in hospitals between Regina and Saskatoon we got to come home yesterday.  Caine did his treatment in Saskatoon and we were on the road about 3pm.  Our next appointment will.be in Regina on July 25 (unless his back up med to Peg comes in then maybe a but earlier next week).  Caine was so happy to be out but also very tired after his treatment.

Thank you everyone for your encouragement and continued support.  I am sure we will need more as we work through our journey over the next few years.  BUT so happy to be home and able to spread out and start our new life.

Another boring day...but some good news

Nothing big was going on today other than a few routine tests and xray.  The xray has come back to show that his mass has now been reduced by about 95%.  This is great news...makes all the slow crappy days of sitting here doing nothing seem worth it.  Caine has been energetic again today ( three walks no wheelchair and included stairs)and said it has been a few months since he felt this good.  It is so nice to see him smile.

Tomorrow we do another round of chemo and if all.goes well we should be on our way home to start our new norm.

Stay tuned for an update tomorrow and if we are Regina bound.

Also special shout out to the great family we meet at Ronald McDonald House, Jesse and Chantal, as they were able to go home with their little girl who was in the NICU for 16 days.  So happy to have meet you and happy you get to go home and start your new norm as well.

Today was a good day

Today was a good day.  Caine was energetic (was walking around and even pushing Brody in the wheelchair) and happy.  The doctor came in and stated that we would start with the new drug next week.  He also stated that even with his reaction to the last drug we are still on track to head home onThursday after our treatments (which will be the same as the day one treatments so no issue with reactions).   That really made Caine happy as he is really bored and misses his friends and decent food alot.

Special thanks to Jenny for coming to see Caine.  It may not have looked like it made a difference but it did he said it made him feel better.

Tomorrow brings xrays and a few other tests to get ready to go home on Thursday.

Bad day for round 2

We started our second treatment today with a medication they call Peg.  This is the most risky one for kids to have an allergic reaction to.  Caine got about half way through and he reacted.  His ears were hot and itchy and he started to cough.  The treatment stopped and they gave him benelyn.  It helped but gave him a nasty headache.  So they also gave morphine.  He is now sleeping and stable.  This now means new game plan and different medicine (which after what happened today I am 100% ok with).

I have been reading take it a day at a time and now i understand why as things can change that quickly.

We did have alot of.visitors this weekend which helped lift his spirits alot.  First there was Lucas and Andrea.  With them here we got to see silly Caine again.

Next was Uncle Kenny and Auntie Chantal.  Ken was the first person to make him laugh in days and they made a game plan for hockey season so Caine is over the moon happy.

Next was a visit from.his bestie Kellyn and Scarlett and Sophie. The two of them acted like they hadn't missed a step.  I am so happy Caine has a friend like Kellyn that we know will be there no matter what.

Last but not least Auntie Paula stopped in.  She made him his special doll with a PICC line, removable hair and face mask.  Caine and Kellyn thought it was awesome and honestly I do too.  Paula always knows what will make people feel better.

Here is hoping Tuesday is uneventful.

UPDATE:  Caine is up and alert.  He woke up and said and I quote "holy shit that hurt..like someone shot me in the head"....he is positive and ready to go now...this is making me feel better now.

Finally some down days

Caine has nothing happening again until Monday.  So we will.hang out, play xbox watch movies, take some walks, head outside.  Caine will be some visitors over the weekend so that will help cheer him up.

I think we could all use some good news...Caine got an xray this morning and his mass in his chest has shrunk about 75% already and after day one of chemo his blood levels are still above normal.  FINALLY something good...I know we just started but starting off strong.

Will update at the end of the weekend.  Have a great one.

Day 7...Diagnoses is in and treatments have started

I didnt have it in me to update yesterday.  They have solidified his diagnoses as T cell acute lymphoblastic leukemia. There was cancer cells in his bone marrow (it stated 65%).  Every lymphoma will have cancer in bone marrow but once it goes over 25% it changes to leukemia vs lymphoma. So that being said we now have a 3 year journey vs 2 but there is only one additional drug he requires with the change.  In researching kids with ALL there is a 98% success rate of complete cure with first treatment and 90% success rate of  never returning.  I will take those odds.

Two of my best friends, Paula and Debbie, were here yesterday for all.of this.  I love them both so much and thankful they were here to help me through yesterday.  Wish they could stay the whole time.

Grandpa Art also showed up today and was able to help us through this.  Caine and Brody were very happy to see him.

Highlight we did get to meet another Rider Christensen Jones (or CJ as he calls himself).  He was pretty funny.  Hope to see him out on the field next game.

Yesterday he also had a PET scan.  He was very brave and took 45 mins and he didnt move so did awesome.

We started treatment today and if he does well we can head home in a week or two to.continue at home in Regina.  This will be.my view for a few months...

Even though this isnt the story we wanted we will continue on......please keep praying and visiting (but please call.or text first)

Day 5..let's the steroids and mood swings begin

It has been a pretty uneventful day.  He started steroids to begin shrinking his mass.  They did warn us that he would have mood swings and an increase in appetite and he has both....but I have to admit it it nice to see him eat again.  We did go for an Echo of his heart as the mass did move it a bit.  His echo looks awesome.  Still and always will love our cardio team and now get to see them twice as much as they will also follow Caine on his journey.

We have a PET scan scheduled for tomorrow at 11am.  They like to do this before treatment and after to closely compare pictures to watch full progression.

I had a good day as I got to visit my good friend Crystal.  There is nothing better than being able to talk someone on the outside.  Thanks Crystal our chat today really helped.

For tonight we are back to  normal..Caine complaining about hospital wifi while playing Fortnite with his buddies, the constant untangling of cords, and constant asks for food.  I guess this will be the new norm for a while and I am glad to have it. 

Til tomorrow.....

Biopsy Day....

Our doctor..Dr. Alvi...made it happen today.  Caine went in for his biopsy at 3pm today.  He was scared and brave at the same time ( more than I can say for myself).  We were allowed to be with him while they put hin out.  He was funny he was saying things like "Mom you look funny as there are two of you", " It looks like a carnival.in here  no wait a car show"...He was out around 445 and was up right away in recovery (but took a 2 hour nap shortly after)  Caine did awesome during the procedures and is most happy no more IVs as they put in a PICC line.  They will be starting him on steriods today to start the shrinking process and will start treatment when they 100% finalize his type cancer (Dr. Alvi  is thinking before weeks end).  Keep out little man iny

Some of you are asking about Brody.  He is here along with my Mom.  We are staying at our new home away from home Ronald McDonald House and tonight Brody found a hamburger to model with...he has been comic relief that is for sure...

Some news...not good but news

Today the doctor came in and let us know that from some others tests he has done he is 90% sure Caine has T Lymphoblastic Lymphoma.  They will start on steriods on Tuesday after biopsy to start shrinking it followed by treatment plan when they are 100% sure (by Friday at latest).  This is common in boys 10 to 14...he doesnt know why kids get it but have treated everyone successfully with it....it will be a 2 year journey with this..so let the journey begin. 

Caine remains positive and wants to get things going so he can get home to his bed and friends. 

We did bring some luxuries from home to entertain him a bit...ie his xbox 😋

Please keep us in your thoughts and prayers as we go down our new path.

New journey begins but now with Caine

July 4, 2019 our lives changed again.  Caine was sick and we took him into get checked.  It was found that he had massive fluid on his lungs, over 1L to be exact and a very large mass growing in his chest cavity.  They were unable to do biopsy tests ( to underatand if we are dealing with something begnin or cancerous)in Regina so we were airlifted to Saskatoon at 10pm on July 5, 2019.

On the bright side in Regina Roosevelt and Thigpen from the Riders showed up and we got to visit and get some swag...great guys.

Since arriving here we have had more testing to ensure when the biopsy is complete all doctors have their input in to only have to do it once.  They are anticipating it to happen on Tuesday but for now we wait.

Let the new journey begin...the Webers are strong and will overcome this too.