Monday, 15 July 2019

Bad day for round 2

We started our second treatment today with a medication they call Peg.  This is the most risky one for kids to have an allergic reaction to.  Caine got about half way through and he reacted.  His ears were hot and itchy and he started to cough.  The treatment stopped and they gave him benelyn.  It helped but gave him a nasty headache.  So they also gave morphine.  He is now sleeping and stable.  This now means new game plan and different medicine (which after what happened today I am 100% ok with).

I have been reading take it a day at a time and now i understand why as things can change that quickly.

We did have alot of.visitors this weekend which helped lift his spirits alot.  First there was Lucas and Andrea.  With them here we got to see silly Caine again.
Next was Uncle Kenny and Auntie Chantal.  Ken was the first person to make him laugh in days and they made a game plan for hockey season so Caine is over the moon happy.

Next was a visit from.his bestie Kellyn and Scarlett and Sophie. The two of them acted like they hadn't missed a step.  I am so happy Caine has a friend like Kellyn that we know will be there no matter what.

Last but not least Auntie Paula stopped in.  She made him his special doll with a PICC line, removable hair and face mask.  Caine and Kellyn thought it was awesome and honestly I do too.  Paula always knows what will make people feel better.



Here is hoping Tuesday is uneventful.

UPDATE:  Caine is up and alert.  He woke up and said and I quote "holy shit that hurt..like someone shot me in the head"....he is positive and ready to go now...this is making me feel better now.

1 comment:

  1. Hi Jamie, I will pray for a swift and full recovery! May the love of God embrace you and Caine and provide you with the strength needed to tackle this difficult situation. If you need to come to Edmonton for treatment, my home is open for you. God bless.

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