one more night in the PICU

Last night in the PICU was terrible.  Brody fought against the sedation and was at times quite angry.   He actually had a full blown tantrum because they wouldn't give him milk.  He ripped his nose prongs out (which give him oxygen), he ripped the patch off his forehead which measures oxygen pressures in his head and  took out one if his IV lines.  He slept a total of 1 hour as I think he kept waking up scared.

He is quite tired today and has the odd coughing fit, which is quite painful for him.  However he has been having hour or longer naps today so hopefully since it will be quieter tonight he will have a longer rest...Wade is staying with him tonight too so I can get some rest.

If his levels remain where they are he will go up to 3 which is our first step to getting out of here.  I  definately do not want to rush him but getting upstairs gives us more privacy and quiet (and an actual bed for me and Wade)

Here is to a new day tomorrow and to Brody continuing to bounce back the way he is now.

Surgery complete now time to recoup

At 1 pm we were told that Brody's surgery was complete and all went well.  When we went back to see him his breathing tube was out however his pacemaker is hooked up but just to get the electrodes working right again.  They are working on whining him off his med and possibly getting him out of PICU tomorrow sometime.   I am so proud of my brave strong little man.  He has been through hell today but still wants to beat up uncle Kenny.

Good night everyone and here is hoping for good news tomorrow too.

Surgery has begun....and I am totally losing my mind

This morning was the first morning I can remember in a long time that we had to wake Brody up.  He said he didn't want to go and get his heart fixed  he just wanted to go home.  Poor little dude but he was so strong and brave and stubborn....he would not put on the hospital pj's so they took him back in his Rider pj's.

Once we get word after his surgery I will post something with an update.  Surgery will take 5 to 6 hours.

Preopp done only surgery to go

We were at Preopp bright and early 8am....it was a long day for our little warrior.  He went through an echo twice, EKG,  meeting various people and even had blood work done.  Brody NEVER cried during any tests.   He has been such a brave little guy I couldn't be more proud of him at this moment.

After we were done we were all so exhausted we came back to Ronald McDonald house and took a 2 hour nap.  It was awesome.  We then decided  to give Brody his favorite supper out Bugs And Cheese from Boston Pizza.  We then went downtown for a quick visit with cousin Jerry and Autie Bev.   He got to swing and watch the boats in the harbour he loved it.

Now just getting ready for bed and praying for a somewhat peaceful sleep to prepare us for tomorrow.

One last thing, there are some great things to do here at Ronald McDonald house. ..especially slides..soon buddy you won't need to take a break all the time just enjoy☺

We have arrived!!!

The date is set - SEPTEMBER 11

We have received a date (a while back but not sure I really wanted to deal with it).  It is going to be on September 11.  We are flying out to Vancouver on Sept 9 for preopp on 10th.  Thanks to the Saskatchewan Children's Hospital Foundation for covering at least two flights as it really does help out.

Brody is going in for the Fontan surgery.  What does this mean you ask???  With his first surgery his blood got directed to come from his head directly to his lungs with very little coming from his heart.  Now they will reverse that...they will direct the blood from his lower body to come directly to his lungs, make his heart a three chamber heart and remove the bad valve.  It is still open heart but they will not have to stop his heart with this one.  Also if all goes well this should be his last surgery possibly ever!!!  Nothing is ever for sure but for now I will take it as I am pretty sure I am going to be a complete and udder mess as we get closer to the date.

So that being said we have been out having some summer fun and took a family holiday.  We did what we refer to as the Alberta loop...Medicine Hat, Drumheller, Calgary, and Banff.  Here is some great pics of Brody having a blast.

THE TIME HAS COME :(

We went for a check up on June 23, 2014 as my Mom's intuition kicked in and was telling me something wasn't right.  It was right (dam intuition).

When they did Brody's first surgery they made a whole between the top two chambers of his heart to assist in mixing the blood properly that goes out to the body.  Brody's hole is trying to heal itself and is starting to grow shut which is causing him to tire much more easily.  So we are now in waiting mode to hear from the surgical team in Vancouver as to what our next steps are.  I won't say I am not scared to death and I think about it all the time.  I just can't believe we have to go through this again and almost 3 years to the day from his last surgery.

On the up side Brody is doing well.  He is enjoying summer and his big brother. He loves going to the park and riding his bike.  When is tired out from his day his favorite thing to do is snuggle with Grandpa.



 

 

Brody and Caine had their yearly pictures taken again by Drawn Daisy Photography. Krista is so wonderful with the kids and they have so many good pics..here are a few.

Stay tuned for updates next week (and if I can actually fix those pictures that are coming on sideways)