Almost done DI!!!!

So we are done with the harder drugs of this piece of treatment (the Cyterabine which usually made him feel icky but seemed to be ok this time thank God).  Although this medication does make his counts and blood work drop substantially (which over the weekend is what made him feel crumby).  He required a blood transfusion on Tuesday, Feb 25 and he is getting platelets today on Wednesday, Feb 26.  His counts are also way down to almost 0 (0.1) so if you even have a sniffle please stay away until you are 100% or until his counts come back up which hopefully will be by end of next week. 

As part of the last two weeks of DI, he will receive his last 6 shots of Erwina (he will have 72 total since the start of these).  He did one on Monday and will do one today so he will be complete with these by March 6...that is also the end date of DI....which is the END OF FRONTLINE!!!!!!  I can't believe it.  I will update after March 6 with our celebration party of being done....

2nd half of Delayed Intensification starts!!!

Caine sailed through the first half of DI without much complication at all.  He got tired from the doxorubicin (or the red devil) as it is referred to, but otherwise he did great.  During the 1rst half of DI he had two steroid stints which were hard as after day 5 both times he had major leg and hip pain.  This is a side effect of the steroids.  It took a few days after he was completed his 7 day cycle to go away.  He was pretty brave and tough during that whole ordeal.

We started the 2nd half of DI on Monday.  We will have a busy month with being at the clinic for most of February.  However the hard stuff will be done on February 21 and then his last Erwina shots ever will be completed on March 3!!!

MARCH 3, 2020 is the conclusion of FRONTLINE treatment.  It has been a long 8 months with one to go but we can see the light and are so happy to have made it through as successfully as we have.  Dr. Haq has even commented to Caine that has been a Pediatric Oncologist for 25 years and he has never seen anyone go through the treatment like him.  Caine is a tough little man and I am so proud to say I am his Mom....

Keep praying and thinking of us through February and stay tuned for big party information to follow :)