Where to start the past 24 hours have been filled with alot of emotion. Let's start with the extreme low...it doesn't have to do with Brody but one of his cardiac nurses, Jan Rooks. It was published last night that she is one of r he 4 Canadians that died in the avalanche in the Nepal avalanche. I am in to a shock as we were just talking to her last month àbout this trip and she was so excited. She was our rock our first trip out to BC when we had Brody and continued to show nothing but support and passion in his follow up surgeries. She was a one of a kind individual with THE biggest heart you could ever find. She is going to be sadly missed and I am glad we got to see her one last time as she always brought some brightness during times that were no always so bright. Rest in peace Jan...at least you were doing something you loved.
On a better note we were in Saskatoon for a check up with Brody yesterday. He is doing well. Maintaining weight and is 100 cm tall. He is such a trooper for all the tests even though he wants nothing to do with them. He is still in junctional rhythm hut Dr. K isn't concerned as his blood pressure and heart rate are great and his oxygen is up around98%. We have to go back in about a on the then will probably have a 24 hour Holter pit on if his heart rhythm doesn't come back to normal.
His scars are healing wonderful...I grabbed a picture when he was pretending to be Scott Voss for. Here Comes to Boom (his favorite movie). Have a great weekend from our family to yours and please remember to cherish everyday as you don't know what tomorrow may bring.
Friday, 17 October 2014
Thursday, 2 October 2014
3 weeks....and things keep getting better (other than sleep that is)
Well it has been three weeks and he keeps getting better every day. We went for a follow up appointment in Regina yesterday and everything is still the same...although they are seeing more p waves but it is still firing at the same time as his q waves. They should be going p then q. They seem very hopeful will fid itself.
His sleeping has gotten worse over the past week (if you can believe it). He is sleeping like a newborn...Up every 3 to 4 hours. Sometimes with nightmares from what happened other times with chest pains as he was sleeping on his chest for three hours. Tonight when I was putting him to bed (and it is now 10 pm and he still isn't sleeping) he grabbed my hand and put it over his scar and said Mom my owy and it hurts. Hold it. My heart broke...I feel so useless as there isn't anything I can do to help other than tell him I love him. This is by far the worst feeling in the world. ..complete helplessness.
His sleeping has gotten worse over the past week (if you can believe it). He is sleeping like a newborn...Up every 3 to 4 hours. Sometimes with nightmares from what happened other times with chest pains as he was sleeping on his chest for three hours. Tonight when I was putting him to bed (and it is now 10 pm and he still isn't sleeping) he grabbed my hand and put it over his scar and said Mom my owy and it hurts. Hold it. My heart broke...I feel so useless as there isn't anything I can do to help other than tell him I love him. This is by far the worst feeling in the world. ..complete helplessness.
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