We had a good check up this morning with Brody. If it wasn't for his irregular heart beat he would have been the perfect fontan. We are still hoping and praying that his heart gets back to normal but only time will tell. I really don't feel.like going back to Vancouver.
Brody and I had an awful time getting home (Wade was lucky and got on the direct flight). We left Vancouver fine and on time and even. Loaded the plane in Calgary on time. ..then we were asked to get off due to electrical issues. 3 hours later we left and landed at 10 pm...Brody is exhausted.
We got home and to my surprise Caine was still up...I was so happy to see his smiling face. The I walked inside....
WE HAVE THE BEST FRIENDS EVER!!!!!! Not only did they decorate but loaded our freezer with food. Paula and Jay, Steph, Debbie and Brad, Dana, Kathy and Shawn, Linda and Joe, Phil and Scarlett Thank you so much means to world to us. We couldn't ask for better friends. We can't wait to see you all soon too I missed you guys!!!!!!!
Wednesday, 24 September 2014
Sorry I forgot to post last night...
Things are still going great. We ventured out today to Metrorown and then meet Brody's new best friend, Jerry for supper. He has really taken to Jerry. He is what we refer to as the BC Kenny. We ate currently waiting at our appointment now to talk to doctors so will update tonight as we are headed out on a flight at 2 pm.
Monday, 22 September 2014
The Gong show continues.....
Brody is just fine. We didn't get to go to our appointment today as our doctor, Dr. Gandhi, was part of a bicycle accident in the weekend so our appointment has been rescheduled to first thing Wednesday morning. Man what else could go wrong to keep us here when all we want to do is go home. So that being said we hung out at Ronald McDonald house while Brody took another 3 hour nap. Been long days but what are you gonna do
Sunday, 21 September 2014
Just hanging waiting for our appointment tomorrow
We haven't been up to much today. We headed to Stanley Park for a bit this morning and hung out this afternoon watching the Rider game (can't believe they pulled off the win), visited with Aunt Denise, Chris and his fiancé Anna (really liked her good job Chris), and had a great steak supper here at Ronald McDonald house with Jerry and Andrea. Overall just ready to get home. Here is hoping for great news tomorrow and to get packed up and ready to come home on Tuesday. Stay tuned. .....
Saturday, 20 September 2014
Missing my big guy
Today our big guy headed back to Regina with my parents. It was so sad but he was so brave. He has been such a trooper during this whole time something that no six year old should ever have to go through. Wade and I can't wait to give him some one on one time and take a small over night trip with him very soon.
The rest of the day was a three hour nap, supper at Old Spaghetti Factory and a visit with Brody's new favorite friend Jerry and his wife Andrea.
Overall things are going well. He has a tantrum every time medicine time comes and won't let us change his shirt. .but other than that he is doing well.
The rest of the day was a three hour nap, supper at Old Spaghetti Factory and a visit with Brody's new favorite friend Jerry and his wife Andrea.
Overall things are going well. He has a tantrum every time medicine time comes and won't let us change his shirt. .but other than that he is doing well.
Friday, 19 September 2014
Green is the new Orange!!!!
Today was our first day out and we went back...the Grey Cup was there. We walked in the typical Rider style to claim our cup. They all I think we're shocks that people from Saskatchewan were their in their Saskatchewan Rough rider jerseys...although we did get to meet Lula
We even made it into a BC lions video...which is hilarious as when Lulay tried to hold Brody he lost it.
m.bclions.com/video/103109
After that we had a great three hour family nap..now trying to find something to do tonight.
We even made it into a BC lions video...which is hilarious as when Lulay tried to hold Brody he lost it.
m.bclions.com/video/103109
After that we had a great three hour family nap..now trying to find something to do tonight.
Thursday, 18 September 2014
We're out!!!!!!
We got out at 1145 this morning. They only took out his pace wires this morning so we had to wait around for 4 hours. His heart is still in what they refer to as junctional rhythm. However they are all confident it should return to normal once the swelling goes down. If it doesn't we will be back in Vancouver within three months to get a pacemaker. I am on the fence about all this but so happy he is out and feeling great. When he walks he isn't winded anymore and today Caine told him to understand across the courtyard (small one of course) at Ronald McDonald house and he did and was barely breathing heavy at all.
All in all it has been a great day. We have a follow up on Monday at 11 so time for some relaxation and a bit of fun.
PS this was the first time we could get him in shirt for the past week☺
All in all it has been a great day. We have a follow up on Monday at 11 so time for some relaxation and a bit of fun.
PS this was the first time we could get him in shirt for the past week☺
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