Finally some down days

Caine has nothing happening again until Monday.  So we will.hang out, play xbox watch movies, take some walks, head outside.  Caine will be some visitors over the weekend so that will help cheer him up.

I think we could all use some good news...Caine got an xray this morning and his mass in his chest has shrunk about 75% already and after day one of chemo his blood levels are still above normal.  FINALLY something good...I know we just started but starting off strong.

Will update at the end of the weekend.  Have a great one.

Day 7...Diagnoses is in and treatments have started

I didnt have it in me to update yesterday.  They have solidified his diagnoses as T cell acute lymphoblastic leukemia. There was cancer cells in his bone marrow (it stated 65%).  Every lymphoma will have cancer in bone marrow but once it goes over 25% it changes to leukemia vs lymphoma. So that being said we now have a 3 year journey vs 2 but there is only one additional drug he requires with the change.  In researching kids with ALL there is a 98% success rate of complete cure with first treatment and 90% success rate of  never returning.  I will take those odds.

Two of my best friends, Paula and Debbie, were here yesterday for all.of this.  I love them both so much and thankful they were here to help me through yesterday.  Wish they could stay the whole time.

Grandpa Art also showed up today and was able to help us through this.  Caine and Brody were very happy to see him.

Highlight we did get to meet another Rider Christensen Jones (or CJ as he calls himself).  He was pretty funny.  Hope to see him out on the field next game.

Yesterday he also had a PET scan.  He was very brave and took 45 mins and he didnt move so did awesome.

We started treatment today and if he does well we can head home in a week or two to.continue at home in Regina.  This will be.my view for a few months...

Even though this isnt the story we wanted we will continue on......please keep praying and visiting (but please call.or text first)

Day 5..let's the steroids and mood swings begin

It has been a pretty uneventful day.  He started steroids to begin shrinking his mass.  They did warn us that he would have mood swings and an increase in appetite and he has both....but I have to admit it it nice to see him eat again.  We did go for an Echo of his heart as the mass did move it a bit.  His echo looks awesome.  Still and always will love our cardio team and now get to see them twice as much as they will also follow Caine on his journey.

We have a PET scan scheduled for tomorrow at 11am.  They like to do this before treatment and after to closely compare pictures to watch full progression.

I had a good day as I got to visit my good friend Crystal.  There is nothing better than being able to talk someone on the outside.  Thanks Crystal our chat today really helped.

For tonight we are back to  normal..Caine complaining about hospital wifi while playing Fortnite with his buddies, the constant untangling of cords, and constant asks for food.  I guess this will be the new norm for a while and I am glad to have it. 

Til tomorrow.....

Biopsy Day....

Our doctor..Dr. Alvi...made it happen today.  Caine went in for his biopsy at 3pm today.  He was scared and brave at the same time ( more than I can say for myself).  We were allowed to be with him while they put hin out.  He was funny he was saying things like "Mom you look funny as there are two of you", " It looks like a carnival.in here  no wait a car show"...He was out around 445 and was up right away in recovery (but took a 2 hour nap shortly after)  Caine did awesome during the procedures and is most happy no more IVs as they put in a PICC line.  They will be starting him on steriods today to start the shrinking process and will start treatment when they 100% finalize his type cancer (Dr. Alvi  is thinking before weeks end).  Keep out little man iny

Some of you are asking about Brody.  He is here along with my Mom.  We are staying at our new home away from home Ronald McDonald House and tonight Brody found a hamburger to model with...he has been comic relief that is for sure...

Some news...not good but news

Today the doctor came in and let us know that from some others tests he has done he is 90% sure Caine has T Lymphoblastic Lymphoma.  They will start on steriods on Tuesday after biopsy to start shrinking it followed by treatment plan when they are 100% sure (by Friday at latest).  This is common in boys 10 to 14...he doesnt know why kids get it but have treated everyone successfully with it....it will be a 2 year journey with this..so let the journey begin. 

Caine remains positive and wants to get things going so he can get home to his bed and friends. 

We did bring some luxuries from home to entertain him a bit...ie his xbox 😋

Please keep us in your thoughts and prayers as we go down our new path.

New journey begins but now with Caine

July 4, 2019 our lives changed again.  Caine was sick and we took him into get checked.  It was found that he had massive fluid on his lungs, over 1L to be exact and a very large mass growing in his chest cavity.  They were unable to do biopsy tests ( to underatand if we are dealing with something begnin or cancerous)in Regina so we were airlifted to Saskatoon at 10pm on July 5, 2019.

On the bright side in Regina Roosevelt and Thigpen from the Riders showed up and we got to visit and get some swag...great guys.

Since arriving here we have had more testing to ensure when the biopsy is complete all doctors have their input in to only have to do it once.  They are anticipating it to happen on Tuesday but for now we wait.

Let the new journey begin...the Webers are strong and will overcome this too.

Will Winter Ever End???? But We are going GREAT!!!

I tried making a resolution to update once a month starting in July...that hasn't gone very well...so here it goes.

JULY 2016
The Weber's took their first Summer vacation (we did two this year).  We went to Winnipeg to visit our friends the Housers.  It was great to get the kids together and the adults to catch up (we miss them dearly and still think they should move back to Regina).  We went to a amusement park called TinkerTown and just hung out otherwise with our friends.  Brody absolutely loved the Scrambler ride and the roller coasters (pretty sure we will be rider buddies).

AUGUST 2016

Vacation #2.  We went to Edmonton.  To break up the trip we overnighted in Saskatoon on the way there and back.  WE stayed at the Sheraton (which has an awesome waterpark).  Brody figured out that he liked Waterslides and went up and down about 50 times (which I was impressed with as his stamina on the stairs is impressive).  We stayed in the West Edmonton Mall Hotel as well.  The kids thought it was awesome.  We didn't even have to leave the mall.  WE did the waterpark (again Brody found a slide he loved and just continued to go up and down), Galaxyland (loved the roller coasters) and we even ventured out and went to the zoo.  It was a great relaxing week.

We also went on a train ride in Ogema, Saskatchewan with Grandpa Weber.  It was a lot of fun with  pop in a bottle even, which the kids thought was awesome.

SEPTEMBER 2016

First day of kindergarten, I can't believe it.  I always wondered if we would get this far and here we are starting kindergarten with no restrictions other than talking to the teachers and letting him tell them his limits.  It is not secret that he idolizes his big brother.......

OCTOBER 2016

We had a very busy October.  Brody received the Guardian of the Month award at School for the virtue of Respect.  We were VERY proud of him.  Sports also started this month however....we enrolled Brody in ice hockey and he was mad getting ready and then gave us the stink eye on the ice the whole time.  When he got off the ice and undressed he came up to me and yelled "I HATE ICE HOCKEY I THOUGHT YOU WERE PUTTING ME IN BALL HOCKEY".  Point taken as we could still remove him without having to pay so it all worked out.  Also it was Halloween (which this year he absolutely LOVED).  Nothing but Chocolate for Brody :)

DECEMBER 2016

Brody had his first ever Christmas concert and it was great.  It was nice to watch a Christmas concert with no kids bugging me (I will admit I really enjoyed it).  We did a lot of tobogganing as it was a beautiful December so spend as much of it outside as possible.  Then there was Christmas...well Brody had to write a letter to Santa, then another, and then make sure there was cookies and milk and then up at 5am on Christmas morning to make sure he arrived.  He was appreciative of all his gifts from new socks to the new Wii he got.  I hope that continues.  We also celebrated New Years Eve with some friends and Brody made it to 1130 (which is impressive as he usually doesn't make it past 8pm)

FEBRUARY 2017

HAPPY NEW YEAR!!!!  We had a busy New Year with all of Caine's hockey and Brody starting Basketball (which he is really great at).  In February we needed a vacation and went to Phoenix, Arizona.  WE stayed it the same place as last time in Maricopa.  WE attended one hockey game and the rest of the time we just hung around the pool, went to the arcade (which Brody loved the motorcycle game) and Laser Tag (as they call it there).  He says the favorite part of the trip is the restaurant Mom took them to.  We all went to the RainForest Café and it was awesome. 

We also had our 9 month check up with Dr. Bradley.  His check up went well.  Everything still looked great  and he is still in junctional rhythm when at rest.  They will continue to monitor him but we do not have a follow up for 1 year!!! I never thought I would hear that....I am so happy with this outcome and so proud of Brody for being so strong and continuing his battle with CHD with fierce.  He likes to tell people about his special super charged heart all the time.  I am proud that he is proud of his "war wounds"