Missing my big guy

Today our big guy headed back to Regina with my parents.  It was so sad but he was so brave.  He has been such a trooper during this whole time something that no six year old should ever have to go through.  Wade and I can't wait to give him some one on one time and take a small over night trip with him very soon.

The rest of the day was a three hour nap, supper at Old Spaghetti Factory and a visit with Brody's new favorite friend Jerry and his wife Andrea.

Overall things are going well.  He has a tantrum every time medicine time comes and won't let us change his shirt. .but other than that he is doing well.

Wishing I was home with Caine. 

Green is the new Orange!!!!

Today was our first day out and we went back...the Grey Cup was there.  We walked in the typical Rider style to claim our cup.  They all I think we're shocks that people from Saskatchewan were their in their Saskatchewan Rough rider jerseys...although we did get to meet Lula

We even made it into a BC lions video...which is hilarious as when Lulay tried to hold Brody he lost it.
m.bclions.com/video/103109

After that we had a great three hour family nap..now trying to find something to do tonight.

We're out!!!!!!

We got out at 1145 this morning.  They only took out his pace wires this morning so we had to wait around for 4 hours.  His heart is still in what they refer to as junctional rhythm.  However they are all confident it should return to normal once the swelling goes down.  If it doesn't we will be back in Vancouver within three months to get a pacemaker.  I am on the fence about all this but so happy he is out and feeling great.  When he walks he isn't winded anymore and today Caine told him to understand across the courtyard (small one of course) at Ronald McDonald house and he did and was barely breathing heavy at all.

All in all it has been a great day.  We have a follow up on Monday at 11 so time for some relaxation and a bit of fun.

PS this was the first time we could get him in  shirt for the past week☺

Day 7...and hopefully last day in hospital

Brody is doing excellent today.  Off most monitoring devices and up and walking and playing like normal.  It is unbelievable how one week makes such a difference.

Doctors did rounds tonight...there was a consensus from three cardiologists that he should go home in his irregular heart rhythm and be monitored as they are pretty sure that in due time it will work itself out.  So that being said we have to hang in Vancouver til early next week then can head home and be followed in Saskatchewan. If for some reason his heart doesn't bounce back to normal rhythm we will have to come back to Vancouver in 3 months to get a pacemaker put in.

Now to say good night and hoping that the next post is from Ronald McDonald house.

Day of Extreme highs and los

Brody has had a Rollercoaster of a day.  All his tubes are out and his pacemaker was unhooked.   His heart rate still has an irregular beat but they want to see how he does without the pacemaker to see if it will correct itself ( they believe it has some mild swelling still).  If it doesn't correct itself he will have to get a permanent pacemaker in next week
  Please lots of prayers and positive heart thoughts.

Brody has been up walking alot and he actually was out and about in his car.  He is acting like the old Brody and even tried to beat up Caine tonight (thank God Caine knew not to fight back)

Brody didn't sleep much last night or today due to lots of checks and tests.  They promised not to bug him tonight so here is to a better tomorrow.

We had a good day ☺

Brody had a great day.  As stated earlier O2 off, 2 tubes out and his IV is out.  We got up and walking today and played playroom.  Even got a giggle and a smile.  The only two that could walk him today were the Grandpas...now to get his last tube out and the pacemaker off.  Stay tuned for updates tomorrow  for now good night.

Day 55...I mean 5

Brody is doing better this morning.  We actually even got a smile out of him.  He is up and playing with cars and later today we will get out and go play in the playroom.

Brody got his oxygen off yesterday and he got two tubes off this morning.  Still has his pacemaker in but the doctors seems confident that he will be off in due time.

Once we get in the playroom I will grab some pictures to post.   We are headed in the right direction.