Well there goes my monthly update promise but I am going to try again.....
September 2015
Brody started Preschool this year. He was so excited to go talked about it since June..until we got there.
It took him a few weeks and he is really enjoying it now and it is REALLY improved his speech. So happy we enrolled him.
This is the exciting news...Brody was selected to be one of 8 kids to take part in a Saskatchewan Children's Hospital Foundation fund raiser. Garth Brooks was the main attraction to this event...he was the speaker for the play structure that CHF wants to put in and did it all for free. All funds raised at the event went that the play structure (it was a $5000 a plate event so needless to say this was the only way we were getting in). We got to go back stage and meet lots of people. We meet Mike Babcock who is the coach of the Toronto Maple Leafs. He asked the boys who their favorite hockey team was and Brody said the Chicago Blackhawks :) and Caine said the Toronto Maple Leafs. Mike asked Caine if we told him to say that and Caine just looked at him and said No why would they.... we also got to meet Weston Dressler and Brett Smith from the Riders...I think me and Wade enjoyed that more...at least I did :)
Then Brody got to go on stage with 7 others in Regina to Thank Garth Brooks for doing the event for CHF and each child got a personal signed jersey from Garth. He seemed like a really down to earth great guy and I wish we could have had some one on one time with him. By the time the event ended it was 10pm and Brody was exhausted and to be honest Garth looked exhausted to.
It was an absolute honor for the Weber family to represent the Saskatchewan Children's Hospital in Regina. I would volunteer or do anything to help out this great organization.
OCTOBER 2015
6 month check up.... he is doing great. His stats are still great...96 to 97 for O2 staturation... blood pressure normal and growing steady at 41lbs and 105cm....so happy he is doing well. I said to Dr. Pocket his cardiologist that when you think he is going left he goes right and you can't guess what he will do next. His cardiologist wanted to check his blood work for elevated readings as his liver is still slightly enlarged. She said I was right that all his levels came back normal and she would have bet his liver readings would have been elevated. He is still in Junctional rhythm so will be doing a heart monitor in the new year to review.
Also had a great Halloween. Brody was quite into it this year as he just wanted his candy. He wanted to be Spiderman again so we got him a new outfit. Caine wanted to be a Zombie...which really but my creative talents to work but I think it turned out pretty good.
NOVEMBER 2015
This was a whole new year for Brody of trying something new. He really wanted to play ice hockey..we got the check mark from the cardiologist and signed him up. He had a hard time at first staying upright but enjoys it a lot. He is on the Wild just like Caine was so VERY happy about that.
DECEMBER 2015
The month with full of Christmas Concerts, Christmas Parties and Christmas itself. It was a great month with family and friends and the kids had a great Christmas. Lots of presents and a surprise of a trip in February to Phoenix to see the Coyotes play. They are so much bigger than last year it is crazy!!!!
JANUARY 2016
In typical New Year's Day fashion (and since it was +2) we got all bundled up and went sledding as a family. It is so amazing how Brody doesn't get winded like in the past. I am so thankful for great surgeons that can help kids with heart defects have "normal" lives.
We have also taken in a lot of Regina Pats games...Brody has become such a huge Pat's fan it is crazy... Thanks Tim Horton's for creating a Pat's sprinkle donut that he HAS TO HAVE because it is a Pat's donut.
January was not a good month for us at all.... Brody's best friend, his Grandpa Mike Ritsco, passed away after having a risky heart surgery. It is so ironic that they were the best of friends and ultimately similar hearts. We call Brody mini Mike as he is my Dad is a small form...same stubborn personality and as it turned out both had "different" type hearts that needed help. We miss him dearly everyday and talk about him often. Forever in our hearts
FEBUARY 2016
Well our trip to Phoenix had arrived. We stayed at a friends house in Maricopa and it was fabulous...great heated pool and hot tub, close to shopping and about an hour away from hockey and basketball. We of course took in a Phoenix Coyotes game and they even won and an NBA Phoenix Suns game unfortunately they did not. We have a blast just taking it day by day with very little stress. We even went to the Phoenix Children's Museum... it was great for Brody lots of cool things to do however Caine was at that age that he was maybe a year too old but he still tried to enjoy it. We really needed a trip with some downtime as a family. It was a great way to reconnect after our crazy January and get the rest and relaxation we needed.
We had a our 24 hour heart monitor put on for Feb 26..which was interesting as he had a birthday party at Dinobouncers. I am not sure if it is the person who put it on or just crappy tape but the leads kept coming off and I had to band aid them back on. Thank goodness for the cardiac nurse that was at the party as she assisted me in getting them back on the right spots...I hope it doesn't botch his results too bad but should give them a good sense how what his heart does when he is highly active :)
I will try to keep my promise of updating monthly moving forward.
