Just wanted to give everyone a quick update.
We have been home now for two weeks and doing well. We have been just getting to know eachother and it is all good. Except for the lack of sleep for everyone and Caine having some sort of a cough that we are going to get looked at tomorrow.
We have gone to our doctor appointment follow ups here in Regina. Our Cardiologist, Dr. Kakadekar, said he is very happy with him and doesn't see the need to see him again for 6 weeks. That was reassuring that is for sure. We are going to our Family doctor, Dr. Leibel every week for the first month or so and then will change to every two weeks after that if things are going well. Overall all good check ups. We are very happy with our little guy and how strong he really is :)
Tuesday, 26 April 2011
Wednesday, 13 April 2011
One Way Ticket Please!!
Sorry for the late response but we have been running a bit since the end of the MRI on Monday.
So on Monday Brody went through his MRI. It is what they thought DORV with Tetrology (elongating of one of the arteries). They want him to grow into it a bit before doing any surgury to be certain that they do the right correction. We have been told that could be anywhere from 3- 6 months out and will be back in Vancouver. We are confident in both the Cardiac Surgeon and the Cardiologist however we are now flying by the seat of our pants and watching for signs. It is a really odd feeling..not only do you worry about the typical newborn things but now we have to watch for signs of blue or minor distress. Kind of scarey but I know we can do it. Brody is a pretty tough little guy I know he will be great through all of this.
After his MRI we were free to leave and leave we did. We went to stay at the Fairmount Hotel at the Vancouver Airport to be that much closer to home. It was great :) We were able to get onto the direct Air Canada on Tuesday at noon and are now home safe and sound.
It has been quite the whirlwind to begin with and now the home life becomes interesting just due to having Caine being a bit confused as to why this baby isn't going home and why Mom can't play. It will be an interesting few months.
Feel free to call us anytime to come for a visit...Brody loves to be cuddled. We will still add to this blog as we move closer to the day of surgury as we have tons of doctor and specialist appointments coming up that we will keep everyone atuned to.
So on Monday Brody went through his MRI. It is what they thought DORV with Tetrology (elongating of one of the arteries). They want him to grow into it a bit before doing any surgury to be certain that they do the right correction. We have been told that could be anywhere from 3- 6 months out and will be back in Vancouver. We are confident in both the Cardiac Surgeon and the Cardiologist however we are now flying by the seat of our pants and watching for signs. It is a really odd feeling..not only do you worry about the typical newborn things but now we have to watch for signs of blue or minor distress. Kind of scarey but I know we can do it. Brody is a pretty tough little guy I know he will be great through all of this.
After his MRI we were free to leave and leave we did. We went to stay at the Fairmount Hotel at the Vancouver Airport to be that much closer to home. It was great :) We were able to get onto the direct Air Canada on Tuesday at noon and are now home safe and sound.
It has been quite the whirlwind to begin with and now the home life becomes interesting just due to having Caine being a bit confused as to why this baby isn't going home and why Mom can't play. It will be an interesting few months.
Feel free to call us anytime to come for a visit...Brody loves to be cuddled. We will still add to this blog as we move closer to the day of surgury as we have tons of doctor and specialist appointments coming up that we will keep everyone atuned to.
Sunday, 10 April 2011
And Brody is free!!!
Yesterday was a great day (and not just because it was my birthday). Even though Brody still has to get heart surgury he is well enough to not have to be in the PICU....The nurses weren't happy as they loved him. Brody had so much mojo with them that everytime we went down there he was missing as someone was giving him cuddles. We have been told by many doctors and nurses that they VERY rarely see this happen that a child from the PICU gets released back to the normal Mommy Baby Ward so again beating all the odds....
Brody spent the night last night with me in my room and lucky me his nights and days are all mixed up. So finally at about 7am we got a good 3 hour sleep in....I totally forgot about that stuff but hey it is all worth it in the end. He is also starting to eat like a little piggy which is good as he has gained weight here and they are very happy to see that as most babies in his condition do not have an easy time feeding but let me tell you he has no issues.
It has been a very emotional day for me as I believewe will be released tomorrow to go home. It scares me to think that I could miss some sign and something could go terribly wrong. But I have to remember that the doctors would NEVER put is health in jeporady, and there is no way they would have let him come up to the ward if he was not healthy enough to do so. So here is to keeping it day by day and making our lives as normal as we can.
We are especially missing our other little man Caine. I wish we could have taken him with us just for entertainment value. I know he is loving being with Grandma and Grandpa and Uncle Kenny and Auntie Chantal took him to Chucky Cheese last night so he is getting spoiled rotten.
Once we have answers tomorrow on the MRI and plans of release we will let everyone know....
Brody spent the night last night with me in my room and lucky me his nights and days are all mixed up. So finally at about 7am we got a good 3 hour sleep in....I totally forgot about that stuff but hey it is all worth it in the end. He is also starting to eat like a little piggy which is good as he has gained weight here and they are very happy to see that as most babies in his condition do not have an easy time feeding but let me tell you he has no issues.
It has been a very emotional day for me as I believewe will be released tomorrow to go home. It scares me to think that I could miss some sign and something could go terribly wrong. But I have to remember that the doctors would NEVER put is health in jeporady, and there is no way they would have let him come up to the ward if he was not healthy enough to do so. So here is to keeping it day by day and making our lives as normal as we can.
We are especially missing our other little man Caine. I wish we could have taken him with us just for entertainment value. I know he is loving being with Grandma and Grandpa and Uncle Kenny and Auntie Chantal took him to Chucky Cheese last night so he is getting spoiled rotten.
Once we have answers tomorrow on the MRI and plans of release we will let everyone know....
Saturday, 9 April 2011
The Game Changer
Jamie's water broke early Thursday morning which took us by surprise. We went to the General hospital in Regina and were subsequently told that our original plan to go to Saskatoon and Edmonton would change. Due to space shortages in the Saskatoon and Edmonton NICU; we were sent by air ambulance to the BC Womens hospital in Vancouver.
Brody Ray Weber was born by C-Section on Thursday April 7th at 10:38pm PST. He was a beautiful shade of pink, weighed 6lbs 5oz and was 19 inches long.
Over the past few days he's been in the PICU (Pediatric Intensive Care Unit) and has posted some surprisingly good stats. His blood oxygentation levels are at or above normal and his coloration is normal as well. These stats caused a stir amongst Dr. Ghandiv (Pediatric Heart Surgeon) and Dr. Sanatani (Pediatric Cardiologist) as this behaviour was counter to their original diagnosis. Since seeing this behaviour on Friday morning the doctors have worked tirelessly with their local staff and WCCHN (Western Canadian Children's Heart Network) peers to determine Brody's true heart abnormality. They have since come to the conclusion that he indeed has DORV and not TGA (Transposition of the Great Arteries).
Heart surgery that was originally being booked for Monday has since been put on hold. Dr's Ghandiv and Sanatani want Brody to have an MRI on Monday so they can get a more detailed picture of his heart as the DORV procedure is much different than correcting TGA. Dr Ghandiv wants to have all of the right information on hand prior to surgery so there are no surprises.
Brody and Jamie will likely get discharged early next week after the MRI results. It is better for Brody to have his DORV surgery in 3 to 6 months when he is bigger and stronger. That means a return trip to Vancouver for us sometime this summer which wont be a problem.
Brody Ray Weber was born by C-Section on Thursday April 7th at 10:38pm PST. He was a beautiful shade of pink, weighed 6lbs 5oz and was 19 inches long.
Over the past few days he's been in the PICU (Pediatric Intensive Care Unit) and has posted some surprisingly good stats. His blood oxygentation levels are at or above normal and his coloration is normal as well. These stats caused a stir amongst Dr. Ghandiv (Pediatric Heart Surgeon) and Dr. Sanatani (Pediatric Cardiologist) as this behaviour was counter to their original diagnosis. Since seeing this behaviour on Friday morning the doctors have worked tirelessly with their local staff and WCCHN (Western Canadian Children's Heart Network) peers to determine Brody's true heart abnormality. They have since come to the conclusion that he indeed has DORV and not TGA (Transposition of the Great Arteries).
Heart surgery that was originally being booked for Monday has since been put on hold. Dr's Ghandiv and Sanatani want Brody to have an MRI on Monday so they can get a more detailed picture of his heart as the DORV procedure is much different than correcting TGA. Dr Ghandiv wants to have all of the right information on hand prior to surgery so there are no surprises.
Brody and Jamie will likely get discharged early next week after the MRI results. It is better for Brody to have his DORV surgery in 3 to 6 months when he is bigger and stronger. That means a return trip to Vancouver for us sometime this summer which wont be a problem.
Tuesday, 5 April 2011
What does our little man have??
We will have a long journey ahead of us. We will have to give birth in Saskatoon Royal University Hospital to be close to the Pediatric Cardiologist. We have found out that April 18th is the day as this little guy is just like his big brother Caine and is bum down so a C-Section must be done. After he is born he will go through tests and we will be refered to the Stollery Children's Hospital in Edmonton to have open heart surgury to fix it and hopefully he can move on to live a normal life.
We have created this blog so you can follow our journey from April 18th on..... We want to thank everyone for their support and will keep everyone posted as we move forward.
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